The Immortal Life of Henrietta Lacks: Other Books of Interest

This groundbreaking study documents that the infamous Tuskegee experiments, in which black syphilitic men were studied but not treated, was simply the most publicized in a long, and continuing, history of the American medical establishment using African-Americans as unwitting or unwilling human guinea pigs.

From 1932 to 1972, the United States Public Health Service conducted a non-therapeutic experiment involving over 400 black male sharecroppers infected with syphilis. The Tuskegee Study had nothing to do with treatment. It purpose was to trace the spontaneous evolution of the disease in order to learn how syphilis affected black subjects. The men were not told they had syphilis; they were not warned about what the disease might do to them; and, with the exception of a smattering of medication during the first few months, they were not given health care.Now, in this revised edition of "Bad Blood", Jones traces the tragic consequences of the Tuskegee Study over the last decade. A new introduction explains why the Tuskegee Study has become a symbol of black oppression and a metaphor for medical neglect

From Library Journal
Relying on prisoners' firsthand reports, Hornblum (urban studies, Temple Univ.) has written a thorough account of the questionable medical experimentation carried out in Philadelphia's Holmesburg Prison from the mid-1940s to 1974. Research on everything from cosmetics to chemical warfare agents was conducted there, often with minimal or no record keeping. Such research raises serious ethical issues. Throughout, Hornblum asks whether prisoners can give informed consent, particularly when the potential consequences of the research are not fully explained. Although most of the book centers on Holmesburg, Hornblum does cite other prisons across the country where similar practices took place before they received widespread condemnation in the 1970s. What is shocking about this is that it did not happen in the distant past but in our own generation, with the doctors involved still in practice. Frighteningly, Hornblum reveals that at the Nuremberg trials Nazi doctors cited American prison practices as a defense for their nefarious medical experiments in the camps. Essential for students of medical ethics.

In Against Their Will, authors Allen Hornblum, Judith Newman, and Gregory Dober reveal the little-known history of unethical and dangerous medical experimentation on children in the United States. Through rare interviews and the personal correspondence of renowned medical investigators, they document how children—both normal and those termed "feebleminded"—from infants to teenagers, became human research subjects in terrifying experiments.

From Publishers Weekly
In the first half of the 20th century, more than 60,000 Americans-poor, uneducated, members of minorities-were forcibly sterilized to prevent them from passing on supposedly defective genes. This policy, called eugenics, was the brainchild of such influential people as Rockefellers, Andrew Carnegie and Margaret Sanger. Black, author of the bestselling IBM and the Holocaust, set out to show "the sad truth of how the scientific rationales that drove killer doctors at Auschwitz were first concocted on Long Island" at the Carnegie Institution's Cold Spring Harbor complex. Along the way, he offers a detailed and heavily footnoted history that traces eugenics from its inception to America's eventual, post-WWII retreat from it, complete with stories of the people behind it, their legal battles, their detractors and the tragic stories of their victims. Black's team of 50 researchers have done an impressive job, and the resulting story is at once shocking and gripping. But the publisher's claim that Black has uncovered the truth behind America's "dirty little secret" is a bit overstated. There is a growing library of books on eugenics, including Daniel Kevles's In the Name of Eugenics and Ellen Chesler's biography of Margaret Sanger, Woman of Valor. Black's writing tends to fluctuate from scholarly to melodramatic and apocalyptic (and sometimes arrogant), but the end result is an important book that will add to the public's understanding of this critical chapter of American history.